First off – thank all of you for your kind words, positive thoughts and prayers for my recovery that you have sent since my last post. (Announcement) I recently found these words from one of my personal heroes, Margaret Mead: “Sooner or later I’m going to die, but I’m not going to retire,” and I have been inspired to wonder, what’s next?
As a follow up to my book, The Boy Who Could Run But Not Walk, I am launching a new section of my website which will focus on practical, age appropriate treatment and therapy options for people who have suffered a brain or nerve injury at or near birth. I hope eventually the content of this blog will be collated into a new book.
The blog title 20:4:80 Program references the 20 years parents have to raise their child in preparation for 80 years of life. These 20 years are hard work! But first, parents need to know what works when in the various types of injury. Some approaches are universal, others are more time sensitive, and all of them deliver maximum results when sequenced correctly. The 20:4:80 posts are based on 40 years of experience in the field. I have been blessed by visiting and learning from neuroscientists and master clinicians in many different countries, as well as Canada and the USA. Evidence-based and best practice interventions will be identified when available in the pediatric world. Other approaches, that are not yet studied as intensively in children, will be also presented with the evidence that they work in adults. In my experience, there is often a 10 to 20-year lag in testing and using effective interventions in pediatrics.
What about the older child, teenagers and/or adults that were never offered some of these options? In some cases, they were not available and some options had not even been thought of when they were children. For this reason, I will try to also offer suggestions for them as well. Other than the time dependent maturation of the brain limited to children and teenagers, nearly all interventions can lead to improvements for the older individual.
Finally, and most importantly, I hope you will share your experiences with me. With each post for the 20:4:80 Program blog, I will ask a question or two with the hope that you will let me know your experience and thoughts on each topic. I am setting up a Private Group on Facebook to facilitate this process. By working together, you can be an important part of change. Informed parents are empowered parents. Knowledge is power at all levels. My purpose is to create a movement for change in my lifetime.